GOLD Nugget: bonus episode
This GOLD Nugget episode sees Helena reflect on some of the insights offered by Laurence Woollard, haemophilia patient advocate and Founder and Director of On The Pulse Consultancy.
In these clips, Laurence shares his personal experience of living with haemophilia and his journey into patient advocacy, the knowledge gap between the pharmaceutical industry and patients living with rare diseases and more.
A little more on GOLD’s guest…
Laurence Woollard is the Founder and Director of On The Pulse – an independent, strategic consultancy providing specialist insight on patient activation campaigns in haemophilia and rare disease. Laurence has extensive patient advocacy experience, having advised on and implemented a broad scope of community awareness, research and educational initiatives. Laurence has published numerous thought-leadership articles and is a member of the Patient Engagement Committee for Findacure. Highly driven by his own journey and challenges of living with severe haemophilia from birth, Laurence campaigns for and effects real change in improvements to quality of life and care for his peers.
If you’re interested in learning more about the topic areas discussed in this episode, check out the following content: